|
AKU ATTENDS RHEUMATOLOGY CONFERENCE The Alkaptonuria Information Centre exhibited at the British Society for Rheumatology Annual Conference in Liverpool to raise awareness about Alkaptonuria amongst Rheumatology professionals and to possibly identify new patients. Read more...
AKU ATTENDS FIRST RARE DISEASE DAY The AKU Society was present at Europe’s first Rare Disease Day on 29 February 2008. Over 150 patients from across the country travelled to Westminster to meet parliamentarians face to face to raise the awareness of the needs of patients with rare diseases and to discuss policy developments at a UK and European level. Read more here.
WE'VE JUST LAUNCHED OUR FIRST PHD PROJECT We're really pleased to say that we are just starting our first PhD project, at the Royal Liverpool University Hospital. Adam Taylor is the doctoral student who is carrying it out. Following a gap year in North America Adam went on to study anatomy and human biology at The University of Liverpool and graduated from the course in July 2007 with a high upper second class honours degree. During his honours year Adam undertook a practical dissertation project on AKU looking at "The binding of homogentisic acid to the extracellular matrix in cultures of human chondrocytes and osteosarcoma cells", under the supervision of Professor Jim Gallagher. The project gave promising results. Read more here...
THE GREAT CUMBRIAN RUN ADOPTS THE AKU SOCIETY We are extremely fortunate that the Great Cumbrian Run has adopted the AKU Society as one of its chosen charities for 2007. This is a key sporting event, with numerous people running the race to raise much-needed funds for the AKU Society.
AKU Society Chairman Dr Nick Sireau praised the run's organiser Mike James for his help. Nick said: “What we’ve done over the past few years is to get families involved. And a lot of our families do sponsored runs, fundraising events. When Mike heard about this, he realised that a good thing he could do was actually to get it involved with the Cumbrian Run and to raise funds that way, so we’re extremely grateful for what he’s done.”
If you'd like to run for the AKU Society at the Great Cumbrian Run,
go to http://www.newsandstar.co.uk/cumbrianrun/
THE FIRST EVER MEETING OF AKU PATIENTS AND DOCTORS The first ever meeting of AKU patients and doctors took place in Liverpool in December. It was a fantastic occasion and provided an opportunity to speak to world leaders in medicine about the latest research into AKU. More than 45 people attended, of which 16 were AKU patients - the first time so many had gathered in the same place - along with six doctors from the Royal Liverpool University Hospital, with which the AKU Society has a long-standing partnership. Download the report of the event.
|
