As some of you may know, our manager and founder of the Alkaptonuria Society suffered a stroke at the end of April. We are extremely pleased to report Bob is now back home and recovering exceptionally well, having regained most of his speech and is in good spirits. We would like to thank everyone on behalf of Bob who sent their well wishes and cards, it is very much appreciated.
We are very pleased to announce that we have established the first Alkaptonuria Information Centre based in the Royal Liverpool University Hospital, UK. The centre has been established in order to support existing and new Alkaptonuria sufferers and also to promote awareness of AKU amongst the medical profession.
