Welcome to the AKU Society Newsfeed. This page lists all the current news from
the AKU Society. Brief summaries will appear on the homepage, in the "Latest
News" box, and full stories appear here. We've got Oliver writing the AKU news,
and links to Nick's blog posts on the role of a patient organisation in
treating rare diseases.
We are holding the 5th International Workshop on AKU next week (Friday 18 - Saturday 19 November 2011). It hopes to be an exciting event detailing the latest work in AKU.
We're also planning on using it as a launch-pad for our new campaign to move towards a phase III clinical trial of nitisinone in AKU patients.
We believe nitisinone is the best hope for a treatment of AKU, and a successful trial will be the evidence we need to ensure every AKU patient can get access to the drug.
To understand the reasoning behind our support for nitisinone, please check our campaign page: Campaign for a Phase III clinical trial.
More information about our plans will be given at the Workshop. If you cannot attend, watch the website for updates during and after the meeting.
If you would like discuss our plans, you can as always, contact the AKU Society Chairman, Dr Nick Sireau, at nick@akusociety.org
If you liked the work we are doing here, why don't you donate to help us continue, and
remember to check back regularly for updates.