Route Map
Route Maps for Rare Conditions
Empowering. Informing.
Caring.
What do you do if you're a new patient, who has just been told they have a rare and serious genetic disease called alkaptonuria?
This resource is designed to help you find the information you need to understand and live with AKU.
THE PATHWAY (click the links for more information)
- Symptoms
- Research
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This work is a part of the Route Maps for Rare Conditons project, facilitated by the Genetic Alliance UK and funded by the Department of Health in England.
"A Route Map is defined as a comprehensive, living guide which will signpost the way to health and social care for patients and families to help improve access to information, leading to earlier diagnosis, improved care and support. Route Maps will also benefit health and social care professionals providing them with information to enable them to work in conjunction with patients and families to plan for their care."
--Genetic Alliance UK
...Links to other route maps...