The Team


The AKU Society is a registered charity, dedicated to the support of patients with AKU and the advancement of research into AKU. 

Trustees:  
Robert Gregory (founder), 
Dr L Ranganath (co-founder and Medical Director), 

Communications Project Manager: Oliver Timmis
Patient Support: Duncan Batty

We also work alongside other patient organisations and in partnership with several research teams. Click on a person's name to find out more about them and the work they do to help combat AKU.

Patient Organisations

ALCAP - based in France, the Association pour la Lutte Contre l'Alcaptonurie is a patient organisation for the French-speaking world.
President: Serge Sireau
Medical Advisor: Prof Robert Aquaron
Website: www.alcap.fr
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AIMAKU - based in Italy, the Associazone Italiana Malati di Alcaptonuria works closely with the University of Siena.
Website: www.aimaku.it
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AKU Society North America - based in USA, this patient group covers the USA and Canada.
AKU Canadian Representative: Sudhish Pai

Research Groups

University of Liverpool
Department of Musculoskeletal Physiology
Department of Pharmacology
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Royal Liverpool University Hospital
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University of Cambridge
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University of Siena
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National Institute of Health, USA
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Slovak Academy of Sciences
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University of Mutah, Jordan