About Us
The AKU Society was set up in December 2003 to develop a website to provide information and support to Alkaptonuria sufferers. However, we soon realised that in order to make a real difference to people with Alkaptonuria, the group had to become more proactive, supporting medical research and developments that could benefit Alkaptonuria sufferers. The society has been very fortunate to have as board members individuals who can really assist us in our new plans. They bring to the charity a wealth of experience in medicine, community politics and voluntary service. The AKU Society aims to raise awareness about Alkaptonuria among patients, their families, the public, and the medical profession, and to fund research to help find a cure to this serious and rare disease.
To find out more about our aims, see our Mission Statement
To find out more about our associates, see The Team
If you want to know how we started, see Our History
If you want to know how we afford research, see Our Funders
For those that want to help, try Volunteering
Company Registration: 4814120
Registered Charity No: 1101052