Patient Help

One of the principal objectives of the findAKUre group is to provide support, information and assistance to both patients and carers.

Please us the links below to find information on each topic:



Read the stories we've collected from patients living with AKU, here.

Read our latest brochure by downloading here.

Join the AKU Community at Rare Disease Communities.

Another great resources are the factsheets produced by the Disabled Living Foundation, to see them click here.

If you cannot find the help that you needed in these links, please contact us (info@akusociety.org) to ask a specific question.